Inaugural ReNU Hope Family Conference & Scientific Symposium
The first-ever international gathering of ReNU syndrome families, scientists, researchers, and clinicians following the groundbreaking RNU4-2 discovery
Wednesday, July 23rd, 2025
11am - 3pm: Complimentary Pre-Conference Family Event: Long Island Children’s Museum
1pm - 2pm: Pizza lunch at the Children’s Museum: Private room at the museum
4pm: Hotel Check-in: Long Island Marriott
5pm - 6pm: Documentary Happy Hour, hosted by the documentary team - This exciting event will be recorded. ReNU
6pm - 8pm: Attendee Mixer with appetizers
6pm - 8pm: Pre-Conference Meet & Greet: Long Island Marriott
July 24th, 8:30am - 4:30pm: Main Meeting of Families & Presenters: Long Island Marriott
6pm - 9pm: Dinner Reception: Long Island Marriott
July 25th, 10am - 12pm: Family Outing: suggested pool time and/or park - weather-permitting
July 25th, 9am - 4pm: Scientific Symposium: Northwell Health 2000 Marcus Avenue
Wednesday July 23, 2025
11:00-3:00 pm: Complimentary Children’s Museum Family Event
1:00-2:00 pm: Pizza lunch to be Served in private room
4:00 pm: Check-in at hotel for anyone arriving that day
6:00-8:00 pm: Attendee Mixer in Hotel – appetizers served, kids welcome
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Thursday July 24, 2025
8:30-9:30 am: Breakfast & check kids into ReNU Room & Sibling Space*
9:30-9:45 am: Intro to the ReNU Syndrome United Board
9:45-10:00 am: Sponsors Welcome Address
10:00-12:30 pm: Parent & Research Presentations
12:30-2:00 pm: Lunch Activity
2:00-4:00 pm: Family & Researcher Presentations
4:00-4:30 pm: Vision for the Future & Wrap up
4:30-6:00 pm: Free time
6:00-9:00 pm: Dinner
*Optional childcare services will be provided by registered volunteers during the Family Conference on July 24th
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Friday July 25th, 2025
9:00-3:00 pm: Scientific Symposium for scientists/clinicians/researchers at Northwell
10:00-12:00 pm: Family Event - Meetup at Eisenhower Park (weather-permitting)
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Build Community
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Raise Awareness
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Advance Research
* Build Community * Raise Awareness * Advance Research
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Wednesday July 23, 2025
11:00-3:00 pm: Complimentary Children’s Museum Family Event
1:00-2:00 pm: Pizza lunch to be Served in private room
4:00 pm: Check-in at hotel for anyone arriving that day
6:00-8:00 pm: Attendee Mixer in Hotel – appetizers served, kids welcome
___
Thursday July 24, 2025
8:30-9:30 am: Breakfast & check kids into ReNU Room & Sibling Space*
9:30-9:45 am: Intro to the ReNU Syndrome United Board
9:45-10:00 am: Sponsors Welcome Address
10:00-12:30 pm: Parent & Research Presentations
12:30-2:00 pm: Lunch Activity
2:00-4:00 pm: Family & Researcher Presentations
4:00-4:30 pm: Vision for the Future & Wrap up
4:30-6:00 pm: Free time
6:00-9:00 pm: Dinner
*Optional childcare services will be provided by registered volunteers during the Family Conference on July 24th
___Friday July 25th, 2025
9:00-3:00 pm: Scientific Symposium for scientists/clinicians/researchers at Northwell
10:00-12:00 pm: Family Event - Meetup at Eisenhower Park (weather-permitting)
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NY has Uber, Lyft, and taxi cabs available to get around easily. If you need a taxi from the airport, always use the taxi stand line, and do not go with anyone offering a ride from within the inside of the airport.
The primary airports are:
(JFK) John F. Kennedy Intl. Airport - 28.8 km / 17.9 mi
(LGA) LaGuardia Airport - 38 km / 23.6 mi
Other nearby airports include:
(HPN) Westchester County Airport - 65.2 km / 40.5 mi
(ISP) MacArthur Airport - 51 km / 31.7 mi
(FRG-Republic) Farmingdale, NY - 21.7 km / 13.5 mi
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Check-In: 4PM | Check-Out: 11AM
Hotel features include an indoor pool (floats not included), bar/lounge, 24-hour fitness center, and handicap accessible rooms are available upon request
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Click here to view or download a printable list of nearby attractions in NY
Arriving early? Join us for a complimentary outing at the Long Island Children’s Museum
