Awareness Initiatives

Get involved & raise awareness about RNU4-2 / ReNU syndrome

Ways to Get Involved

  • Host a Fundraiser: please contact Lauren.Schwarze@renusyndrome.org

  • Facebook Photo Frame: Email ReNU Syndrome United’s Director with a high-resolution photo and specify the language for your frame

    • For best results, ensure the subjects are centered and leave space around them so the frame doesn't cover them

  • Warrior Wednesday: Every Wednesday, we will highlight one of our ReNU Warriors and share their story. Submit your story here to be featured and help us drive traffic to our website

  • Share Your ReNU Story: Spread the word about ReNU Syndrome by sharing your story with your network, both online and in person

  • Distribute ReNU Syndrome Guide & Testing Resources: Share these valuable resources with doctors' offices, local universities, diagnostic testing centers, and other relevant places

    • Contact us at united@renusyndrome.org to let us know how it went, what you learned, and if anyone wants to meet with ReNU Syndrome United to ask questions or share resources

  • Facebook Fundraiser: ReNU Syndrome United has a nonprofit account with the PayPal Giving Fund, allowing anyone to create a Facebook Fundraiser in support of ReNU. 

  • ReNU Swag: Shop for ReNU Swag at our Bonfire Store, where a portion of every sale goes towards ReNU Syndrome United. If you have local friends interested in ordering, consider placing a bulk order to save on shipping costs.

  • Social Media: Take photos, and post them on social media with #ReNUwarrior #ReNUsyndrome #ReNUsyndromeunited #ReNUawareness #ReNUhope

  • Check out our PREVIOUS EVENTS  & FUNDRAISERS for inspiration!

How to Start a Facebook Fundraiser