ReNU Syndrome Global Resources

ReNU Syndrome United is proud to support global collaboration. We hold monthly Global Committee meetings and invite ReNU groups founded around the world to connect with us! We are happy to provide global branding resources such as logos for organizational hubs that sign a global agreement with us, and to coordinate with Unique to develop guides in multiple languages. We are also happy to connect families, specialists, and industry partners with the leaders of each country hub as needed.

While we are committed to scientific accuracy, as a US-based organization, we cannot necessarily vet all of the content that each country hub produces, and all websites, charities, foundations, and communications from other countries should be viewed as uniquely their own.

Clinical Companion for Families & Care Teams

Book cover titled 'ReNU syndrome' with a drawing of a DNA double helix with stars and sparkles around it, and subtitle 'A picture book about ReNU syndrome and the RNU4-2 gene'.

Children’s Guide - A Gene Story Picture Book

Association Française du Syndrome ReNU

Qu'est-ce que le Syndrome ReNU?