Register your RNU4-2 family member on the

International Map

This map may be used to facilitate collaboration within our community in the following ways:

DRIVE AWARENESS * BUILD COMMUNITY * ADVANCE RESEARCH

Locate clusters of patients & identify areas that may benefit from clinical specialists * Find convenient locations for holding events, conferences, or regional meetup groups * Track numbers of patients and variants globally to encourage research and treatment development

Click here to add a family member

The map does not yet populate automatically. Manual uploads are performed periodically. Thank you for your patience as you may not see each entry posted immediately upon submission.

Pins in the same location overlap - you may request that your pin be shifted slightly for visibility by emailing united@renusyndrome.org with your submission ID or the email you used to opt in to communications.

If you opt in during registration, we may send you ReNU information, messages, newsletters, and may contact you for events and research opportunities. You may also join the map without opting in to communications, if you like.

ReNU Syndrome United thanks Maestra.ai for providing global translation services for live events and transcriptions.

RNU4-2 families mapped to date in: Australia, Belgium, Brazil, Canada, China, Czech Republic, Denmark, England, France, Germany, Greece, Hong Kong, Iceland, Ireland, Israel, Italy, Japan, Netherlands, New Zealand, Northern Ireland, Norway, Palestine, Poland, Romania, Russia, Saudi Arabia, Scotland, South Korea, Spain, Sweden, Switzerland, Turkey, Ukraine, United States, Wales.

Last updated 28 February 2026

Please submit enquiries about starting a global community hub in your country to united@renusyndrome.org