Get excited!! The countdown is on for the upcoming
2027 ReNU Hope Scientific Symposium
Join us for an international gathering of ReNU syndrome families, scientists, researchers, clinicians, and advocates following the groundbreaking RNU4-2 discovery! Tentatively scheduled for July 20, 2027.
Information coming soon! Please check back on this page for further updates.
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Help RNUopathy patient families, clinicians, researchers, and advocates come together!
Sponsorship opportunities coming soon!
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Registration info to come
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We will be providing a new Volunteer Form, if you’re interested in volunteering to either work with ReNU children or their siblings, or helping out in other ways.
If your company requires a form to be completed for your PTO charity days, we will sign off on it once approved.
All volunteers will receive complimentary admission to the conference via a discount code.
Please ensure you have your discount code prior to purchasing a ticket.
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Hotel and room block information in Long Island, NY to come
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NY has Uber, Lyft, and taxi cabs available to get around easily. If you need a taxi from the airport, always use the taxi stand line, and do not go with anyone offering a ride from within the inside of the airport.
The primary airports are:
(JFK) John F. Kennedy Intl. Airport
(LGA) LaGuardia Airport
Other nearby airports include:
(HPN) Westchester County Airport - 65.2 km / 40.5 mi
(ISP) MacArthur Airport - 51 km / 31.7 mi
(FRG-Republic) Farmingdale, NY - 21.7 km / 13.5 mi
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Updated list to come soon