ReNU Syndrome United™ Brand Guidelines

Brand Guidelines

At ReNU Syndrome United™, our brand represents far more than a nonprofit organization — it represents families, connection, advocacy, research, and a growing global community united by hope.

Everything we create should reflect our mission to build community, raise awareness, and help advance research for ReNU Syndrome.

This guide helps ensure that every social media post, fundraiser, flyer, presentation, website update, partnership, and awareness campaign consistently reflects the ReNU Syndrome United identity and mission.

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  • ReNU Syndrome United™ exists to unite and support the ReNU syndrome community while accelerating awareness and research efforts worldwide. Our vision is rooted in empowering families through connection, education, support, and hope for future treatment options.

    Our brand should always feel:

    • Hopeful

    • Compassionate

    • Inclusive

    • Empowering

    • Scientific yet approachable

    • Community-focused

    • Forward-looking

  • Whenever possible, communications should reinforce one or more of the following pillars:

    Build Community

    ReNU Syndrome United exists to connect families worldwide and remind them they are not alone.

    Raise Awareness

    Every story, event, fundraiser, and social share helps increase visibility and understanding of ReNU syndrome.

    Advance Research

    Research participation, registries, advocacy, and fundraising all contribute to accelerating scientific understanding and potential treatment development.

  • Correct Usage

    Always refer to the organization as:

    • ReNU Syndrome United™

    Acceptable shortened references after first mention:

    • ReNU

    • ReNU community

    • ReNU families

    • ReNU syndrome

    Capitalization Matters

    Always capitalize the R, the N and U in ReNU.

    Correct

    • ReNU Syndrome United

    • ReNU syndrome

    • Move4ReNU

    • ReNU Warrior

    • #ReNUsyndrome

    • #ReNUhope

    Incorrect

    • Renu

    • RENU

    • renU

    • reNU

    • ReNu

    Consistency strengthens recognition and helps unify the global ReNU Syndrome United™ community.

    Identifying the Gene vs the Syndrome

    The gene is “RNU4-2” and the syndrome is ReNU Syndrome, with an added “e”. There is no ReNU4-2 gene. The RNU stands for RNA, Nuclear, U4.

    Correct

    RNU4-2 / ReNU Syndrome

    Incorrect

    ReNU4-2 / ReNU Syndrome

  • DO:

    • Use approved ReNU Syndrome United™ logos only

    • Maintain clear space around the logo

    • Use high-resolution logo files

    • Use approved brand colors whenever possible

    • Keep proportions consistent when resizing

    DON’T:

    • Stretch or distort the logo

    • Change logo colors arbitrarily

    • Add shadows, outlines, or effects

    • Rotate the logo

    • Place the logo on cluttered or low-contrast backgrounds

  • ReNU is pronounced “renew” in English.

    The name was chosen intentionally: it reflects the idea of renewed hope for families affected by ReNU Syndrome.

  • The ReNU Syndrome United™ voice should feel human, supportive, credible, and hopeful.

    DO:

    • Lead with empathy and encouragement

    • Celebrate progress and community wins

    • Use accessible language whenever possible

    • Speak with optimism and purpose

    • Highlight collaboration and research advancement

    • Focus on empowerment and action

    DON’T:

    • Use overly clinical or inaccessible language without explanation

    • Create divisive or exclusionary messaging

  • ReNU Syndrome United visuals should feel authentic, hopeful, and community-centered.

    Preferred imagery includes:

    • Real families and caregivers

    • Connection and togetherness

    • Awareness events and fundraising

    • Joyful moments and milestones

    • Research collaboration and advocacy

    • Inclusive representation across ages and backgrounds

    Avoid imagery that feels:

    • Overly sterile or corporate

    • Fear-driven or emotionally exploitative

    • Generic without emotional connection