ReNU Syndrome United™ Brand Guidelines & Resources
Brand Guidelines
At ReNU Syndrome United™, our brand represents far more than a nonprofit organization — it represents families, connection, advocacy, research, and a growing global community united by hope.
Everything we create should reflect our mission to build community, raise awareness, and help advance research for ReNU Syndrome.
This guide helps ensure that every social media post, fundraiser, flyer, presentation, website update, partnership, and awareness campaign consistently reflects the ReNU Syndrome United identity and mission.
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ReNU Syndrome United™ exists to unite and support the ReNU syndrome community while accelerating awareness and research efforts worldwide. Our vision is rooted in empowering families through connection, education, support, and hope for future treatment options.
Our brand should always feel:
Hopeful
Compassionate
Inclusive
Empowering
Scientific yet approachable
Community-focused
Forward-looking
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Whenever possible, communications should reinforce one or more of the following pillars:
Build Community
ReNU Syndrome United exists to connect families worldwide and remind them they are not alone.
Raise Awareness
Every story, event, fundraiser, and social share helps increase visibility and understanding of ReNU syndrome.
Advance Research
Research participation, registries, advocacy, and fundraising all contribute to accelerating scientific understanding and potential treatment development.
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Correct Usage
Always refer to the organization as:
ReNU Syndrome United™
Acceptable shortened references after first mention:
ReNU
ReNU community
ReNU families
ReNU syndrome
Capitalization Matters
Always capitalize the R, the N and U in ReNU.
Correct
ReNU Syndrome United
ReNU syndrome
Move4ReNU
ReNU Warrior
#ReNUsyndrome
#ReNUhope
Incorrect
Renu
RENU
renU
reNU
ReNu
Consistency strengthens recognition and helps unify the global ReNU Syndrome United™ community.
Identifying the Gene vs the Syndrome
The gene is “RNU4-2” and the syndrome is ReNU Syndrome, with an added “e”. There is no ReNU4-2 gene. The RNU stands for RNA, Nuclear, U4.
Correct
RNU4-2 / ReNU Syndrome
Incorrect
ReNU4-2 / ReNU Syndrome
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DO:
Use approved ReNU Syndrome United™ logos only
Maintain clear space around the logo
Use high-resolution logo files
Use approved brand colors whenever possible
Keep proportions consistent when resizing
DON’T:
Stretch or distort the logo
Change logo colors arbitrarily
Add shadows, outlines, or effects
Rotate the logo
Place the logo on cluttered or low-contrast backgrounds
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ReNU is pronounced “renew” in English.
The name was chosen intentionally: it reflects the idea of renewed hope for families affected by ReNU Syndrome.
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The ReNU Syndrome United™ voice should feel human, supportive, credible, and hopeful.
DO:
Lead with empathy and encouragement
Celebrate progress and community wins
Use accessible language whenever possible
Speak with optimism and purpose
Highlight collaboration and research advancement
Focus on empowerment and action
DON’T:
Use overly clinical or inaccessible language without explanation
Create divisive or exclusionary messaging
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ReNU Syndrome United visuals should feel authentic, hopeful, and community-centered.
Preferred imagery includes:
Real families and caregivers
Connection and togetherness
Awareness events and fundraising
Joyful moments and milestones
Research collaboration and advocacy
Inclusive representation across ages and backgrounds
Avoid imagery that feels:
Overly sterile or corporate
Fear-driven or emotionally exploitative
Generic without emotional connection
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