ReNU Syndrome United accepts donations through Benevity and Donor Advised Funds (DAFs)

A Donor Advised Fund (DAF) is a dedicated account for charitable giving. By contributing to your DAF, you can recommend grants to ReNU Syndrome United. These grants are tax-deductible, effective, and impactful, fueling our work to build community and advance research for those affected by ReNU Syndrome.

ReNU Syndrome United is eligible to receive Donor Advised Funds from all DAF providers, including your financial institution, charitable funds like FidelitySchwab, or Vanguard, and community foundations. We are a certified 501(c)3 organization.

3 ways to donate to ReNU Syndrome United through a Donor Advised Fund:

  1. If you already have a DAF: Request a grant distribution through your DAF sponsor, using ReNU Syndrome United’s Tax ID 33-1264597

  2. To send a check, family foundations and other DAFs can mail to ReNU Syndrome United. Email united@renusyndrome.org for address

  3. If you do not currently have a DAF: Set up a DAF through your financial institution or a community foundation to provide flexible charitable giving. For more information on how to establish a DAF, contact your community foundation, financial advisor, or ReNU Syndrome United

If you would like to be recognized for your gift or to make a gift in honor of a loved one, please include contact information.

To donate through your DAF:

  1. Simply access your giving account through your DAF Sponsor - online, over the phone, or in person -

  2. Provide ReNU Syndrome United’s federal Tax ID number: 33-1264597

  3. Confirm how you would like the gift acknowledged & submit your recommendation to your DAF sponsor

ReNU Syndrome United is here to help at every stage. Please email our treasurer Lauren at lauren.schwarze@renusyndrome.org with questions.

The Zeffy donation platform requests that you "Support the 100% free platform we use! ❤️️" This is an OPTIONAL additional donation, and you may adjust it.

If you prefer to donate by check, please make it out to "ReNU Syndrome United" and contact us at renusyndromeunited@gmail.com to request the mailing address. 

To use Apple Pay enabled on your mobile device, please CLICK HERE.

Those affected often experience severe developmental delays, brain anomalies, low muscle tone, vision/mobility impairment, gastrointestinal issues, poor/absent speech, and seizures. 

🧬 Thanks for your kind & generous gift to ReNU Syndrome United - it will enable us to build community, spread awareness, and advance research 🧬

Increased awareness of ReNU syndrome can lead to more research, better medical understanding, and, ultimately, the development of therapies that could improve the quality of life for those affected. And just as important, experience and support from the broader community can lead to more empathy and resources for families like ours.”

- Lisa (ReNU Syndrome Mom)