Help Us Turn Scientific Discovery Into Renewed Hope - SPONSOR TODAY!
2027 ReNU Hope Family Conference & Scientific Symposium
July 20–23, 2027 | Long Island, New York
In 2024, a groundbreaking genetic discovery gave a name to a condition that had gone unrecognized for generations: ReNU syndrome, caused by variants in the RNU4-2 gene. For families who had spent years, often decades, searching for answers, this discovery was life-changing. For the scientific and medical communities, it opened an extraordinary new frontier in neurodevelopmental research.
Although only recently identified, ReNU syndrome is now recognized as one of the most prevalent known single-gene causes of neurodevelopmental disorders, with potentially more than 100,000 affected individuals worldwide. Yet thousands of families remain undiagnosed, and there is currently no approved treatment.
The science is moving forward. The community is growing. And the urgency to translate discovery into meaningful treatments has never been greater.
On behalf of ReNU Syndrome United, we invite your organization to become a sponsor.
This extraordinary gathering will unite families, leading scientists, clinicians, researchers, biotechnology and pharmaceutical innovators, and advocates from around the world. For many families, it will be a rare opportunity to meet others who truly understand their journey. For researchers and industry partners, it will be an invaluable opportunity to collaborate, learn directly from those living with ReNU syndrome, and accelerate progress toward effective therapies.
Your sponsorship is more than support for an event. It is an investment in scientific progress, meaningful collaboration, and the future of thousands of families still waiting for answers and treatments.
As a sponsor, your organization will have the opportunity to:
Accelerate scientific collaboration by bringing together leaders advancing diagnosis, natural history research, biomarkers, and therapeutic development.
Connect directly with the ReNU community and gain invaluable perspectives from families whose lived experiences can help shape patient-centered research and treatment development.
Demonstrate leadership and commitment to innovation in rare and neurodevelopmental disorders.
Build meaningful relationships with researchers, clinicians, advocacy leaders, and industry partners working toward shared goals.
Make a lasting impact by helping families access knowledge, resources, connections, and renewed hope for the future.
We offer multiple sponsorship levels with recognition and engagement opportunities, as well as customized packages aligned with your organization's interests and objectives.
Together, we have an extraordinary opportunity to transform a groundbreaking discovery into progress that changes lives.
We invite you to join us as a sponsor and help move ReNU syndrome research, care, and therapeutic development forward.
To discuss sponsorship opportunities or confirm your support, please contact united@renusyndrome.org.
Together, we can ReNU Hope.
On behalf of the ReNU Syndrome United team, we invite you to become a sponsor of our Inaugural ReNU Hope Conference, to be held from July 20 - July 23, 2027, in Long Island, NY.
The recent groundbreaking discovery of RNU4-2 / ReNU Syndrome has taken the scientific world by storm! This newly-described condition is expected to be one of the most prevalent neurodevelopmental disorders and affects thousands of families worldwide. All the parents have been on parallel medical odysseys for their children’s whole lives, and this will be the first time many are meeting others.
The conference will bring together affected families, scientists, researchers, clinicians, pharmaceutical companies, healthcare professionals, and advocates dedicated to advancing the understanding, diagnosis, and treatment of RNU4-2 / ReNU Syndrome. As a sponsor, your organization will have a unique opportunity to connect with key stakeholders in the field, showcase your support for new and innovative research, and elevate your company’s visibility among professionals who are shaping the future of healthcare. We are offering several sponsorship tiers, each providing a variety of benefits tailored to the level of engagement and recognition you prefer, as well as customized packages to choose from. The impact of your sponsorship extends beyond the conference itself. By supporting ReNU Syndrome United, you will be demonstrating your commitment to advancing research in rare diseases and the medical community. Additionally, the exposure at this event can position your organization as a leader in healthcare innovation and social responsibility. Please feel free to contact us directly at united@renusyndrome.org questions and to confirm your sponsorship. with any We hope you will consider supporting our conference and help to ReNU Hope for those impacted via this incredible opportunity!
Sponsorship Opportunities for the ReNU Hope Conference and Scientific Symposium