Living with ReNU Syndrome
Theo
“In my life, the sun almost always shines — even when it’s stormy and raining outside.”
I'm The Amazing Theo.
Every morning, when I open my eyes, I wait for the warm hands that lift me out of my bed.
Mom and Dad are always happy when I smile at them and become the happiest boy in the world. That's how a new, wonderful day begins.
In my life, the sun almost always shines — even when it's stormy and raining outside.I'm happy to be here in this world, and I enjoy every single day.
What matters to me the most is that my parents, my little sister, and Aunt Andrea are with me. My little pack, where I feel safe and protected.
Sometimes Mom and Dad worry about me. I don't always understand why. Yes, I'm not the strongest boy, not the smartest, and especially during the cold winter months I get sick quite often. Then those annoying viruses bother me, and I have to go to the hospital more frequently so I can get better again. But that's not my fault.
I am who I am — and I like my world. Isn't being happy the most important thing in life? And that's exactly what I am.
In the hospital, I often hear lots of words about illnesses and about the ReNU syndrome. I think sometimes they're talking about me. Maybe I have exactly that syndrome — that would be quite a coincidence. But honestly, I don't notice anything, so I don't really care. I much prefer thinking about swinging and bathing, about my balls in the ball pit, my TutTut cars, my indestructible books, or my beloved sister. Except when she pulls my hair — then I don't like her very much for a moment.
There are also days when I feel very tired and lost. Those are strange feelings I can't explain, because I love being happy so much. In those moments, my pack is always there for me and takes care of me with so much love. That gives me strength, and I try my best to give that strength back.
Of course, there's much more to tell about me. I wear a professor's pair of glasses, take my time when eating, and I love practicing long-distance throwing with my cutlery. Every week I meet lots of friends, I enjoy traveling — and soon I might even be able to walk.
I can't speak yet, and maybe I never will. That's a pity, but we've developed a secret language instead. Everyone has to guess what I'm thinking, and if I feel like it, I give them clues. I only do that rarely — it should stay a challenge. It's pretty funny. You should try it sometime.
But most of all, I love my family. And I know that I am very loved. I think that's the reason why I'm so happy.
I wish everyone could see the world through my eyes just once. Then we'd all have a really great time together.
Yours,
The Amazing Theo