Rare Epilepsy Network

Rare Epilepsy Network (REN) Stakeholder Activity, Experiences, Education, and Needs Survey

• How to Enroll

  Click this link to Enroll.

• Overview

  Are you a rare epilepsy patient, caregiver, provider, or advocate? We want to hear from you!

  The Rare Epilepsy Network is recruiting participants for an online survey study exploring the challenges, needs, and priorities of the rare epilepsy community.

• Location

  Complete online surveys on your own schedule.

• Why Participate

  Your individual experience may help scientists better understand this disease and may help improve treatments and care.

• Who Can Participate

  All are welcome — patients (18+), caregivers, clinicians, researchers, and advocacy reps.

• Cost

  Participation is free.

• Compensation

  Survey participants may be eligible to obtain compensation in some cases.

  RSU is not responsible for and cannot guarantee compensation. Review RSU’s Research and Treatment Disclaimer here: https://www.renusyndrome.org/terms-of-service

• Contact Information

  info@rareepilepsynetwork.org

• Frequently Asked Questions

  Contact the Rare Epilepsy Network with questions at info@rareepilepsynetwork.org.