0
Skip to Content
Home
About ReNU
Research
Testing
Resources
Unique ReNU Guide
ReNU Clinical Companion
Donate
Corporate Giving
Map Registry
Newly Diagnosed
Photo Gallery
Newsletters
Fundraising
Events
Shop
RNUopathies
RNU2-2 / ReNU2
Scientific Publications
Articles
Podcasts
Blogs
Videos
Mission
Global Advisors
2025 Conference
Volunteer with RSU
Translate
RNU4-2 / ReNU Syndrome
DONATE
Home
About ReNU
Research
Testing
Resources
Unique ReNU Guide
ReNU Clinical Companion
Donate
Corporate Giving
Map Registry
Newly Diagnosed
Photo Gallery
Newsletters
Fundraising
Events
Shop
RNUopathies
RNU2-2 / ReNU2
Scientific Publications
Articles
Podcasts
Blogs
Videos
Mission
Global Advisors
2025 Conference
Volunteer with RSU
Translate
RNU4-2 / ReNU Syndrome
DONATE
Home
Folder: About ReNU
Back
About ReNU
Research
Testing
Resources
Unique ReNU Guide
ReNU Clinical Companion
Folder: Donations
Back
Donate
Corporate Giving
Map Registry
Folder: Community
Back
Newly Diagnosed
Photo Gallery
Newsletters
Fundraising
Events
Shop
RNUopathies
RNU2-2 / ReNU2
Folder: Media
Back
Scientific Publications
Articles
Podcasts
Blogs
Videos
Folder: ReNU Syndrome United
Back
Mission
Global Advisors
2025 Conference
Volunteer with RSU
Translate
DONATE
  • Registries,
  • Research,
  • Events,
• 3/4/25

Rare-X Registry - Official Launch (English)

You Might Also Like

Related Video Item Thumbnail We Belong Together
Related Embedded Video Item Thumbnail IEU Seminar: Andrew Mumford and Daniel Greene
Related Video Item Thumbnail 2025 ReNU Hope Conference
Related Embedded Video Item Thumbnail De Novo Variants in snRNA RNU4-2 Cause a Frequent Neurodevelopmental Syndrome — Prof Nicola Whiffin
Related Video Item Thumbnail Global Accessibility Awareness

About | Contact | Privacy Policy
 | Terms & Conditions | Tax Deductible Donation | Financials

© 2026 ReNU Syndrome United

ReNU Syndrome United is a registered 501(c)(3) charity | EIN: 33-1264597

ReNUsyndrome.org is strictly an informational website and does not provide medical advice, diagnosis or treatment. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

References: Please see Articles posted on the Media page.