ReNU Syndrome Video Library Skip to Videos Personal Stories | Panel | Education | Fundraising | Events | Registries | Research | Personal Stories, • 6/24/24 In conversation with James Coney and Shaun Pye, a webinar for Rare Chromo Day 2025 Personal Stories, Research, Education, • 7/11/25 Research Summit 2025: Dr Nicky Whiffin Personal Stories, Education, • 4/29/25 Dr Sarah Wynn - How the discovery of ReNU syndrome is impacting patients and families Personal Stories, • 10/21/25 Italian News segment features RNU4-2 / ReNU syndrome families Personal Stories, Events, • 7/24/25 Sibling Superheroes Presented at the 2025 ReNU Hope Conference Personal Stories, Events, • 7/24/25 Global Community Presented at the 2025 ReNU Hope Conference Personal Stories, • 5/15/25 Global Accessibility Awareness Personal Stories, • 4/25/25 Our Diagnostic Odysseys Personal Stories, • 4/29/25 What A ReNU Diagnosis Means To Us 💕 28 February 2026Rare diseases affect 1 in 12 Canadians: Toronto family shares diagnosis experience
